Holm Graessner has graduated in Biomedical Engineering, Cybernetics, Electrical Engineering, German Language and Literature, Philosophy as well as Business Administration. He received his PhD “Summa cum laude” in 2004 and, then, he obtained his MBA degree in 2008.

He has been Managing Director of the Rare Disease Centre, since 2010, at the University and University Hospital Tübingen, Germany. www.zse-tuebingen.de He is Coordinator (Lead PI) of the European Reference Network for Rare Neurological Diseases (ERN-RND, www.ern-rnd.eu). Together with Olaf Riess, he leads the H2020 Solve-RD project on “Solving the unsolved rare diseases” (www.solve-rd.eu) and will also be co-leading the Clinical Research Network of European Rare Disease Research Alliance that will start on 1 Sept 2024. He is a founding member of the European 1 Mutation 1 Medicine initiative.

 

Since 2020, as a fellow of the European Academy of Neurology (EAN) he has been a member of the management teams of the Neurogenetics Panel and the Rare Neurological Disease Coordinating Panel of the EAN.
 

In 2023, he received the EURORDIS Black Pearl Award for Leadership and the first Martha and Wilfried Ensinger Award.