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N=1 Collaborative

Pharma can target ultra-rare conditions — the next step is financing them

Jared Whitlock (Endpoints News)


July 27, 2023


As science has enabled care for previously untreatable, ultra-rare conditions, health systems and governments are struggling with ways of financing research and development of these therapies. What are the solutions when the science has progressed, but the economics haven't?




Pharma can target ultra-rare conditions - the next step is financing them. Endpoints Webinars. (n.d.). https://webinars.endpts.com/pharma-can-target-ultra-rare-conditions-the-next-step-is-financing-them/#:~:text=register%20to%20watch-,Pharma%20can%20target%20ultra%2Drare%20conditions%20—%20the%20next%20step%20is,and%20development%20of%20these%20therapies.

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