Data Sharing

Transparent data sharing will be required to unlock the potential of genetic therapy for orphan diseases. Patients are waiting.

Sign the Data Sharing Pledge

View the Pledge here

Join the N1C and others in signing the Data Sharing Agreement

Start the DSA Discussion

View our Data Sharing Seminar held Feb. 27, 2023

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We are building the shared databases, signing data sharing agreements with academic institutions and companies around the world, and gathering signatures of those who support this critical commitment. Join N1C Participants!

Boston Children's Hospital

Data Sharing

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