Introductions

Hello world!

Welcome to the Introductions group! This group is dedicated to welcoming new members and offering a space to introduce yourself.

We encourage you to share a bit about your background, your connection to individualized medicine, and what you hope to gain from being part of this community. By sharing, you'll help foster a sense of belonging and make connections with others who share your interests and goals.

Jump in and introduce yourself—your story is an important part of our community!

Hi everyone!

I’m Nicole Nolen, and I’m thrilled to be part of this amazing community. I wanted to take a moment to introduce myself and share a bit of my journey. Growing up, my younger brother had an ultra-rare lysosomal storage disorder called mucolipidosis II, better known as I-cell disease. This condition affects nearly every part of the body and is ultimately fatal. As his big sister, playmate, best friend (and occasional rival), caretaker, and advocate, I had a front-row seat to the complexities and challenges of living with a rare disease.

That experience was transformative, giving me a deep understanding of the struggles families face and sparking my passion for science. I earned a master’s in the Business of Biotechnology with the goal of helping to bring meaningful treatments to the underserved rare disease community. Today, as Operations Manager at N1C, I’m honored to work with this incredible community…